What are some organizations for hemophilia

What are some organizations for hemophilia

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Some organizations for people with hemophilia are Genetic Science Learning Center (GSLC), Ntl. Human Genome Research Inst. MORE?

What are some organizations that can help a family cope with a ch…?

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You can go to www.hemophiliavillage.com to find support groups for hemophilia in your area. For unlimited Q’s call 800-224-2242.

Related Questions Answered on Y!Answers

I have 9 questions on ebstein’s anomaly or hemophilia or raynauds syndrome or sick sinus syndrome or…..?

Q: you can answer these 8 questions on any of the following diseases…sick sinus syndrome, raynauds syndrome, hemophilia, ebstein’s anomaly, cardiomyopathy, or bacterial endocarditis PLEASE SPECIFY THE DISEASE/DISORDER YOU PICKED Please number your answers according to my numbers1) Parts of the cardiovascular system affected?2) How does the disease/disorder affect the body?3) Describe the population most commonly affected by this disease/disorder4) What is the cause?5) What is there (if any) as a treatment 6) How can you prevent it?7) What are some societies or organizations that sponsor research or support for the disease/disorder?8) What are the sorces for your information9) any other info you have on it

A: [Collapse] 250 million visitors11 million articles Donate Now » [Expand] Support Wikipedia: a non-profit project. Donate Now » [Expand] Support Wikipedia: a non-profit project. — Donate Now Raynaud’s phenomenonFrom Wikipedia, the free encyclopedia (Redirected from Raynauds Syndrome)Jump to: navigation, searchRaynaud’s phenomenonClassification and external resources Hands with Raynaud’s phenomenon ICD-10 I73.0 ICD-9 443.0 DiseasesDB 25933 eMedicine med/1993 MeSH D011928 Raynaud’s phenomenon (pronounced /reɪˈnoʊz/) (rāy-NŌZ), in medicine, is a vasospastic disorder causing discoloration of the fingers, toes, and occasionally other extremities. This condition can also cause nails to become brittle with longitudinal ridges. Named for French physician Maurice Raynaud (1834 – 1881), the cause of the phenomenon is believed to be the result of vasospasms that decrease blood supply to the respective regions. Emotional stress and cold are classic triggers of the phenomenon, and the discoloration follows a characteristic pattern in time: white, blue and red.It comprises both Raynaud’s disease (primary Raynaud’s), where the phenomenon is idiopathic,[1] and Raynaud’s syndrome (secondary Raynaud’s), where it is caused by some other instigating factor. Measurement of hand-temperature gradients is one tool used to distinguish between the primary and secondary forms.[2]It is possible for the primary form to progress to the secondary form.[3]Contents [hide]1 Prevalence 2 Epidemiology 3 Symptoms 3.1 Investigations 4 Pathophysiology 5 Treatment 5.1 General measures 5.2 Emergency measures 5.3 Drug therapy 5.4 Surgical intervention 5.5 Alternative and research approaches 6 See also 7 References 8 External links [edit] PrevalenceThe phenomenon is more common in women than men, with the Framingham Study finding that 5.8% of men and 9.6% of women suffered from it.[edit] EpidemiologyThere is a familial component to primary Raynaud’s, and presentation is typically before two. Smoking worsens frequency and intensity of attacks, and there is a hormonal component. Sufferers are more likely to have migraine and angina than controls.Secondary Raynaud’s has a number of associations:Connective tissue disorders: scleroderma[4] systemic lupus erythematosus rheumatoid arthritis Sjögren’s syndrome dermatomyositis polymyositis Eating disorders Anorexia Nervosa Obstructive disorders atherosclerosis Buerger’s disease subclavian aneurysms thoracic outlet syndrome Drugs Beta-blockers cytotoxic drugs – particularly chemotherapeutics and most especially bleomycin cyclosporin ergotamine sulfasalazine Occupation jobs involving vibration, particularly drilling exposure to vinyl chloride, mercury exposure to the cold (e.g. by working packing frozen food) Others hypothyroidism cryoglobulinemia malignancy reflex sympathetic dystrophy It is important to realise that Raynaud’s can herald these diseases by periods of more than 20 years in some cases, making it effectively their first presenting symptom. This can be the case in the CREST syndrome, of which Raynaud’s is a part.[edit] SymptomsThe condition causes painful, pale, cold extremities. This can often be distressing to those who are not diagnosed, and sometimes it can be obstructive. If someone with Raynaud’s is placed in too cold a climate, it could potentially become dangerous.Unilateral Raynaud’s, or that which is present only in the hands or feet, is almost certainly secondary, as primary Raynaud’s is a systemic condition. However, a patient’s feet may be affected without him or her realizing it.In pregnancy, this sign normally disappears due to increased surface blood flow.[edit] InvestigationsA careful history will often reveal whether the condition is primary or secondary. Once this has been established, investigations are largely to identify or exclude possible secondary causes.Digital artery pressure: pressures are measured in the digital arteries before and after cooling the hands. A drop of 15mmHg or more is diagnostic. Doppler ultrasound: to assess flow Full blood count: this can reveal a normocytic anaemia suggesting the anaemia of chronic disease or renal failure Urea & Electrolytes: this can reveal renal impairment Thyroid function tests: this can reveal hypothyroidism An autoantibody screen, tests for rheumatoid factor, Erythrocyte sedimentation rate and C-reactive protein, which may reveal specific causative illnesses or a generalised inflammatory process Nail fold vasculature: this can be examined under the microscope [edit] PathophysiologyPrimary Raynaud phenomenon, stemming from Raynaud disease, is an exaggeration of vasomotor responses to cold or emotional stress. More specifically, it is a hyperactivation of the sympathetic system causing extreme vasoconstriction of the periphera